View Full Version : Been in Boulder a lot lately, not in a good way...
hipmamajen
September 27th, 2009, 06:00 PM
My mother in law works on the CU campus. Earlier this month, she collapsed at work, and was rushed to the hospital in a coma. Scary, scary, scary.
She'd had an aneurysm in her brain that ruptured, and at first they were saying that she would probably never regain consciousness, and that if she did it probably wasn't going to be a good thing. :down:
Fortunately, she did wake up, and she's more "with it" than anyone expected. She's still at terrible risk for something called vasospasms, which can follow these events at any time up to 21 days. With no warning, they the blood vessels in her brain can clamp down and essentially cause a stroke, which could permanently disable or kill her. So, they're keeping her in the ICU, but for now she'd be in there anyway since she's still having a lot of problems.
So, we've all gotten a crash course in brain physiology, aneurysms, and ICU lingo. For instance, MIL was on propofol, a sedative, the entire time she was on the ventilator, because it's awfully uncomfortable to have a machine blow your lungs up like balloons 14-20 times an hour. As you probably know, propofol is one of the medications implicated in Michael Jackson's death, so we've found that some medical folks jokingly call it, "Jackson Juice." That gave me a little giggle :)
Anyway, my husband and his brother, and the 2 daughter in laws all live in the Denver area, so we try to go up and spend time with her as much as possible. I'm the only one without a regular job, so I'm up there a lot of the days. I'm glad to be able to go. I don't know what people do in there without family, it's a pretty scary place, and having a brain injury doesn't help.
She doesn't remember anything since the event, so if she falls asleep or enough time passes, she will forget what happened to her, and that she can't get out of bed yet, and what all the tubes, etc are for. Mostly she worries about her dog. We have him at our house, but she doesn't remember that, so every time she thinks about it, she worries that he's home alone, hungry, scared and suffering. She can't talk right now because of the kind of tracheostomy, so she writes all these frightened and agitated notes about him. It's heartbreaking. So, it's good to be able to be there for her. I know the nurses will answer her questions, but they can't be in there full time to reassure her, they have other patients they have to take care of. So, we go and try to cover as much of each day as we can.
Anyway, long story short (too late) that's why I haven't been here. I do try to check in when I can, but most days I'm driving, visiting, driving, trying to catch up at home including the homeschooling, getting a little sleep, and starting over. I do think of you guys a lot, though! I'll have to re-read The Stand now that I'm up there most days of the week, especially with the H1N1 swooping in to kill us all (or do nothing, depending on who you listen to.)
Hugs all around. :love:
Moderator
September 28th, 2009, 07:46 AM
Sending best wishes for a full recovery for your MIL. Don't forget to keep your batteries charged, too, by getting some down time for yourself. (((hipmamajen)))
Spideyman
September 28th, 2009, 08:02 AM
Himama- many prayers and good wishes are being sent your way. I will send you a PM today. Have some suggestions with the short term memory( this is exactly what we dealt with for my neighbor across the road).
JohnDalglish
September 28th, 2009, 08:06 AM
Hi,
All the best to you and yours, AWMMS!
(((((hipmamajen and family)))))
Long days and pleasant nights
Ubasti
September 28th, 2009, 08:09 AM
You and your family are in my thoughts and prayers.
(((hipmamajen)))
Charms7
September 28th, 2009, 08:24 AM
That is very frightening and sad, hipmamajen. Many prayers offered for your mother-in-law's swift and complete recovery.
My grandmother had Alzheimer's disease the last twelve years of her life. She lived with my mom and dad then. Grandma couldn't remember from one minute to the next and asked the same question over and over. Dad would lose his patience with her and just leave the room. I tried to spend as much time reassuring her as possible. Mom went to the store a lot. It is tough going through that, for the victim as well as for family members. My grandmother was 64 when she had the stroke that robbed her of her short term memory.
May your mother-in-law never go through anything like that. I have known people who have suffered terrible illnesses (like a stroke) and fully recovered, too. So keep the faith.
Like Ms. Mod said, take good care of yourself. You're a wonderful daughter-in-law.
rjt65
September 28th, 2009, 08:31 AM
G luck going forward and hope all is well soon Jen!
Positive vibes to Jen!
Haunted
September 28th, 2009, 08:44 AM
Oh my goodness, in an instant things are turned around, arn't they? BUT, it sounds like your MIL is in good hands; she is very lucky.
Ms. Mod is right, you describe your life as back and forthing from there to there, trying to fill everyone's needs. You must take care of yourself too; can't have you collapsing. Why not work a schedule with the others so that everyone has some down time while making sure MIL is covered.
Also maybe someone could take a picture of her dog showing the date or something with one or all of you so that she can see it and reassure herself that he is being taken care of. You could tape it on the underside of her bed table where the mirror is located.
Many prayers.:love:
Volic
September 28th, 2009, 10:31 AM
Sending many prayers for you and the family Jen.
Kim L.
September 28th, 2009, 11:08 AM
All best wishes, good thoughts and prayers for you and youir MIL.
(((((Jen)))))
(((((Jen's mother in law)))))
rose key
September 28th, 2009, 11:16 AM
Prayers are going your way, hipmam, for you and your mom, and your family. AWHS the picture of you and her dog in your house with maybe a sign, or write on the frame of the picture "Dog is OK!" taped to a place where she can see it from her bed would be a great idea.
hipmamajen
September 28th, 2009, 01:16 PM
Thank you, everyone!
I did bring a photo of her dog up, with my kids, to help her remember. I don't know that she "gets" it all the time, but she always likes to see it. I figure I'll bring up another one tomorrow when I go. I had a fever this weekend and had to stay away...
Life can change FAST! It was incredible how quickly priorities were rearranged.
One thing I can say that really helped is that she had all of her medical and financial emergency paperwork together. We were able to find it that night, and know exactly what her wishes were for her care. That alleviated a lot of stress, because we all knew she didn't want to be kept alive at any cost, but her paperwork specified exactly where she draws the lines and made our part of the process so much easier. We can take care of her without second guessing ourselves all the time.
If you don't have all of your paperwork in order, get it that way. Your kids/loved ones will appreciate it some day! I don't even have a will (isn't that awful, my plan so far has been "not to die") but we're getting that and the powers of attorney taken care of now.
Thanks again for all of the prayers, kind words and encouragement. You guys really are something else, you know that? Group hug! I'll be thinking of you, and I'll keep you updated.
Dana Jean
September 28th, 2009, 04:55 PM
Oh kiddo. I'm so sorry you're having to deal with this. It's all so stressful. I just send vibes and prayers for good things. It is very scary stuff.
{{{hugs to your family}}}
hipmamajen
October 4th, 2009, 07:34 PM
Still making the trek most days, but hopefully that will change soon. I'll still be making the trek, but they're talking about moving her to a rehab center soon, and we're hoping to get her closer to home. Yay! No word yet on how long she'll be in rehab, but after that the plan is for her to go home.
There have been two instances in the last week where it's been pretty obvious that Linda remembered something from the day before. That's been EXTREMELY exciting to see. Hopefully we'll just see more and more of that, as she gets better.
In the last week or so, they've started telling us that it may take a year for her to reach full recovery. That's a long time, but since the the beginning no one expected her to get anywhere near full recovery I'm pretty excited about the idea of her being back in a year! :)
We started a blog to keep track of her progress. The idea is that, when she's home and up to it, she can read it and add to it herself (she's familiar with this blog platform because of another blog she keeps) if she wants to. Right now, I update it the most, just because with my schedule I can spend the most time with her. If you'd like to read it and see what she's up to, you can check it here: http://lindasmindfuljourney.blogspot.com/
Thanks again for all of the well-wishes, positive thoughts and prayers. They do seem to be working! You guys are the best :)
hipmamajen
October 26th, 2009, 03:18 AM
Just wanted to update everyone with the good news. Linda was able to go home on Friday. YAAAAYYYYYYYYY!!!!!!!!!!! She ended up being in the ICU for almost a month, then on the rehab floor for two weeks. All told, a miraculously short stay considering how devastating her diagnosis was when she hit the ER.
She can do all of her own bathroom stuff, and get in and out of chairs and her bed. She has to use a walker most of the time, and she can't stand long enough to cook or go up and down stairs well enough to manage her laundry. Fortunately her other son and his wife are in between homes right now (long story) and they were able to move in with her and help with that stuff. And Davin and I can zip up with the kids and help out with anything else that needs doing. Her house is much closer to us than the hospital, so we'll save our trips to Boulder for the fun stuff like their amazing book store on the Pearl Street Mall!
Mentally, she's pretty much 100%. That's such a relief after all the days where she couldn't make new memories, and no one could tell us if that was permanent or not. You really don't know how much stuff you're taking for granted until you're visiting with someone who can't remember when you walked into the room. All my nit-picky little worries just fall away in the face of that kind of trouble. My life is good, oh yeah!
Thanks for all of the prayers and encouragement. She's still got a long road ahead of her, but it's going to get easier and more bump-free every day. She'll be doing all sorts of rehab for a while to come, but no one's saying she won't be able to get back to everything she did before, WOW!
And, since I know you're all curious, as near as I can tell Boulder is doing just fine during the pandemic. Either this isn't the Superflu, or Captain Trips just hasn't cranked up to his full potential yet. So, no worries there ;)
Mookie
October 26th, 2009, 08:36 AM
I am so glad that your MIL is on the road to recovery. What a stressful time for you and your family. Sending many prayers for a full recovery.
hipmamajen
December 9th, 2009, 03:11 PM
Yay, I'm actually in here when everything's unlocked! I'm glad to see it, that means things are going well for Ms. Mod, which is ALWAYS good news! Hugs to you :)
I wanted to update you guys, because my MIL is in really awesome shape! Considering we were told in September that she'd probably die, and if she didn't that she'd likely never have any sort of meaningful recovery, she's definitely knocked that all out of the park.
She's back home now and pretty much back to 100% mentally. Get this, she's even allowed to DRIVE!!!! Can you believe that?
The biggest reminder of her brain injury is that she's still somewhat weak, and she tires easily. So, she can drive herself to a doctor's appointment, but that's pretty much it for the day. She can't manage a lot of her shopping, stores are just too big! And she uses either a cane or a walker, depending on how far she has to go. But other than that, she's back to normal. It's unreal!
We went up there the other day and helped her get all of her Christmas decorations put up. That was a lot of fun, and would have taken her days and days to do. I just kept getting kind of teary, because we really could have spent this Christmas without her. I'm a big old crybaby at the best of times, so everyone's pretty used to it by now....
Anyway, I'm just so glad, and I wanted to share.
And, there's still no Captain Trips in Boulder... ;)
Moderator
December 9th, 2009, 03:15 PM
Thanks for letting us know of her progress--that's great news! :love:
peaceluvnsploosh
December 9th, 2009, 05:55 PM
Sorry to hear that
Kim L.
December 9th, 2009, 05:55 PM
That's great news, Jen, and thank you so much for letting us know.
(((((Jen)))))
(((((Linda)))))
AngelZ
December 10th, 2009, 12:02 AM
Jen,
Best wishes to your MIL for a speedy recovery. Must be difficult because it's around the holidays. Sending good thoughts your way.
StoryTellerRose
December 10th, 2009, 12:21 AM
This is such wonderful news! Miracles do happen... you and your family be sure to have a wonderful, happy, Merry Christmas!!!! =)
Haunted
December 10th, 2009, 08:58 AM
Now, your news does a heart good.:love: So what if one trip to the doctor (driving in Colorado can be an adventure onto itself) wears her out? I'd be pooped too. She is a walking miracle. Such wonderful news. Big Hugs
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